The Reality of Chronic Pain

It's as if I need to retreat into my cave, until I feel like a human again. Because why should I face another human being when I feel like the living embodiment of suffering? Who wants to be around that? It's too much work to put up a facade, like everything is okay. Because obviously it's not! I don't have the energy to be "on" when my body is going through hell.

All the Small Things

Think to yourself "what if all these little moments in my life were magnified and took three times as long to accomplish". Then you might have an idea of what I'm talking about. It becomes a logistical nightmare, dealing with the trickle-down bits and pieces while waging war on the disease itself! But we do it.

I’m in limbo with another diagnosis

Today was harder than most days. I had 14 tubes of blood drawn in hopes of getting some more answers. My rheumatologist ordered the blood work since I've been experiencing a lot of joint and back pain. We want to see if there is another autoimmune disease present along with the Crohn's disease. In my... Continue Reading →

My Nose Woes

I'm experiencing another extraintestinal manifestation of my Crohn's disease. Or as we call it in my house..."extraterrestrial", ha ha ha! Meaning, my disease is essentially inflaming other parts of my body, outside the gastro system. In this case it is the skin on my face...YAY!  I've got seborrheic dermatitis around my nose, basically a red... Continue Reading →

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