It occurred to me recently that a lot of the issues I have coping with this disease may stem from the fact that I am a perfectionist. My Crohn's disease and my inner perfectionist are constantly butting heads in multiple ways. In this blog post I want to cover the different aspects of being a perfectionist and how that has created coping problems for me personally. Identifying the problem is a huge step in solving it. So I'm hoping by sharing my struggle, that someone else might have an Aha! moment like I did and begin coping a little easier. So let's get into it...
It's as if I need to retreat into my cave, until I feel like a human again. Because why should I face another human being when I feel like the living embodiment of suffering? Who wants to be around that? It's too much work to put up a facade, like everything is okay. Because obviously it's not! I don't have the energy to be "on" when my body is going through hell.
Traveling with Inflammatory Bowel Disease can actually be more work than the usual. Vacation takes a lot of planning and preparing for possible flare situations. These are a few tips that have helped me get through my vacations with Crohn's disease.
I ask my friend Christina Sgarlata a few questions about living with chronic illness. She has such great insights especially being in the medical field. Her open mind and well-rounded knowledge are so refreshing! I know that this interview will be helpful to so many readers! Many thanks Christina! Christina Sgarlata, BSN, RN, RYT is... Continue Reading →
Some things happened recently in my life that made me realize-- medications alone won't help improve your quality of life. You have to want a better quality of life for yourself!! More importantly, you have to be willing to advocate for yourself and make your health a priority! I haven't seen anyone really talk about... Continue Reading →
I'm experiencing another extraintestinal manifestation of my Crohn's disease. Or as we call it in my house..."extraterrestrial", ha ha ha! Meaning, my disease is essentially inflaming other parts of my body, outside the gastro system. In this case it is the skin on my face...YAY! I've got seborrheic dermatitis around my nose, basically a red... Continue Reading →
I have to say my most recent struggle has been with FOOD! My last flare of symptoms, which I spoke about in my post Mind Over Matter, was most likely an obstruction due to me eating some pistachios. Yep, you heard me...pistachios! *sigh* Sometimes I just have to pause and take in the full ridiculousness of my... Continue Reading →