I've noticed as I've been feeling better, I don't want to talk about the disease as much. And I have to get out of that mindset. It's why I haven't blogged in such a long while. If I don't talk or write about it, it isn't real. I can pretend that I'm not living with a chronic illness anymore, atleast for now. But I don't know if that is healthy. For me, I think not...I want to continue to educate others through my journey, remission or sickness. It's all part of the journey. I can't do that if I'm not blogging about it.
It occurred to me recently that a lot of the issues I have coping with this disease may stem from the fact that I am a perfectionist. My Crohn's disease and my inner perfectionist are constantly butting heads in multiple ways. In this blog post I want to cover the different aspects of being a perfectionist and how that has created coping problems for me personally. Identifying the problem is a huge step in solving it. So I'm hoping by sharing my struggle, that someone else might have an Aha! moment like I did and begin coping a little easier. So let's get into it...
It's as if I need to retreat into my cave, until I feel like a human again. Because why should I face another human being when I feel like the living embodiment of suffering? Who wants to be around that? It's too much work to put up a facade, like everything is okay. Because obviously it's not! I don't have the energy to be "on" when my body is going through hell.
Part of living a life with Crohn's disease is being so often misunderstood. And more importantly figuring out a way to be okay with that. There will be judgement from others along the way. Obviously we can't control what people think about us and how we live our lives. Not everyone you come in contact... Continue Reading →
A new resource for health information online! Seenso a medical search engine is designed for chronic illness patient needs. Feedback is needed to shape the platform even further!
I was recently at a baby shower and was chatting with a new friend. It was lovely because it was the first time I was able to get out of the house in weeks! I actually felt WELL! Woohoo!!!! Anyway, we were chatting about what we do for a living and I mentioned starting this... Continue Reading →
Okay, I'm gonna come out and say it! Don't try to fix me--lol! I have very good reason to feel the way I do, and I want to share it with others so they see the reality of this disease. Being honest about what emotions I'm going through is helpful for me and helpful for... Continue Reading →