It’s as if I need to retreat into my cave, until I feel like a human again. Because why should I face another human being when I feel like the living embodiment of suffering? Who wants to be around that? It’s too much work to put up a facade, like everything is okay. Because obviously it’s not! I don’t have the energy to be “on” when my body is going through hell.
Part of living a life with Crohn’s disease is being so often misunderstood. And more importantly figuring out a way to be okay with that. There will be judgement from others along the way. Obviously we can’t control what people think about us and how we live our lives. Not everyone you come in contactContinue reading “Judging the Book…”
A new resource for health information online! Seenso a medical search engine is designed for chronic illness patient needs. Feedback is needed to shape the platform even further!
Think to yourself “what if all these little moments in my life were magnified and took three times as long to accomplish”. Then you might have an idea of what I’m talking about. It becomes a logistical nightmare, dealing with the trickle-down bits and pieces while waging war on the disease itself! But we do it.
Some things happened recently in my life that made me realize– medications alone won’t help improve your quality of life. You have to want a better quality of life for yourself!! More importantly, you have to be willing to advocate for yourself and make your health a priority! I haven’t seen anyone really talk aboutContinue reading “Your lifestyle DOES make a difference”
Today was harder than most days. I had 14 tubes of blood drawn in hopes of getting some more answers. My rheumatologist ordered the blood work since I’ve been experiencing a lot of joint and back pain. We want to see if there is another autoimmune disease present along with the Crohn’s disease. In myContinue reading “I’m in limbo with another diagnosis”
The things I have to deal with! As I’m writing this–it’s 3:30pm and I’m beyond exhausted. A normal person would be excited to get off work soon and go home to do whatever they want. I’m curled up on my couch feeling like I can’t even move or keep my eyes open. How is laundryContinue reading “When Your Brain Decides to Shutdown”