I’m in limbo with another diagnosis

Today was harder than most days. I had 14 tubes of blood drawn in hopes of getting some more answers. My rheumatologist ordered the blood work since I've been experiencing a lot of joint and back pain. We want to see if there is another autoimmune disease present along with the Crohn's disease. In my... Continue Reading →

When Your Brain Decides to Shutdown

The things I have to deal with!As I'm writing this--it's 3:30pm and I'm beyond exhausted. A normal person would be excited to get off work soon and go home to do whatever they want. I'm curled up on my couch feeling like I can't even move or keep my eyes open. How is laundry going... Continue Reading →

My Nose Woes

I'm experiencing another extraintestinal manifestation of my Crohn's disease. Or as we call it in my house..."extraterrestrial", ha ha ha! Meaning, my disease is essentially inflaming other parts of my body, outside the gastro system. In this case it is the skin on my face...YAY!  I've got seborrheic dermatitis around my nose, basically a red... Continue Reading →

Food for Thought

I have to say my most recent struggle has been with FOOD! My last flare of symptoms, which I spoke about in my post Mind Over Matter, was most likely an obstruction due to me eating some pistachios. Yep, you heard me...pistachios! *sigh* Sometimes I just have to pause and take in the full ridiculousness of my... Continue Reading →

On The Other Side

Will Smith has experienced exactly what we all go through on our chronic journey--BEING FEARLESS!! The only difference is unfortunately we kinda have no choice, right? We are forced to face our fears more often than the average person.

Mind Over Matter

It's been a long, slow couple days-- feeling nauseous and unable to move much. I couldn't eat any real solid food for two days. I've just been taking it easy on my system with liquids and a few BRAT diet items only. I feel pain on both sides of my abdomen that throbs with discomfort.... Continue Reading →

I don’t want it!

Once I received the news of my diagnosis, my life view began to change. The disease was turning my life into something I didn't want to live and me into someone I didn't want to be. I had to call off work many times due to sickness. I was missing a lot of family gatherings... Continue Reading →

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