Crohn’s Disease Resources on SEENSO.com – A hub of educational information on Crohn’s Disease, all reliable sources. To learn more about Seenso.com look below under the section titled Living the Chronic Life.
InflammatoryBowelDisease.net is an extremely helpful resource and a great IBD community. They have a lot of patient advocates and fellow IBD bloggers write articles on their site, which makes them really special in my book. I personally don’t know of another site that does that specifically for IBD patients and caregivers. I love seeing all the different stories and perspectives. I feel like almost anyone with this disease would find some validation by checking out their website and engaging in the community there.
Crohn’s and Colitis Foundation is honestly THE resource I use for all my education needs on this disease, because it’s what they do. If you haven’t heard of them, you definitely need to check out all they have to offer on their website. You can request educational materials from them for free. They offer support groups all over the US and online for caregivers and patients! They do amazing things for the IBD community! Here are a few of their resources that I continue to reference on multiple occasions:
- The Nitty Gritty— everything you need to know about IBD (Crohn’s and Ulcerative Colitis) all in one place. I use this resource over and over.
- Stress & Anxiety— their role in IBD and a few techniques for coping
- Depression–signs and symptoms of depression and how it connects to IBD
- Women & IBD— a resource hub specifically for women & our IBD related concerns
- Arthritis— a little info on the different forms of arthritis that complicate IBD.
- Skin Complications— a list of different skin issues that may arise with IBD
Living the Chronic Life
Seenso is a great tool for all chronic illness patients, not just IBDers. It is an entire search engine for everything health-related. It’s not like google, they don’t display ads, only qualified information from trusted sources. So you know you are getting the right information! In fact I was so excited about this resource I did a blog post on it as soon as I found out!
The Spoon Theory— What it’s like living with a chronic illness, explained with spoons. You may hear me talk about spoons from time to time or reference being a spoonie–this explains what I mean for those who are curious! It’s quite eye-opening if you haven’t read this story before!